KNOW WHEN TO GET HELP
Call the doctor if any of the following situations occur:
- Experiencing pain, redness, or swelling along the scalp, neck, or chest where the stimulation system is implanted
- If not getting relief from the symptoms even though the neurostimulator is turned on
- Feeling uncomfortable or painful sensations during stimulation
- Cannot turn the neurostimulator off (or on)
- Experiencing any unexpected changes in the severity in the symptoms
- Experiencing any unusual symptoms that may be caused by electromagnetic interference (for example, from theft detectors or airport security)
- Losing the patient programmer
If the DBS System ceases to function for any reason (e.g., battery depletion or exposure to electromagnetic interference [EMI] sources that will shut off the system), the symptoms may return. In some cases, symptoms may return with an intensity greater than was experienced prior to system implant (rebound effect).
Taking Action
- Be sure to let all medical personnel know that you have an implanted DBS system for dystonia, and tell them where it is located. If they have any questions, they should contact Medtronic Patient Services Hours: Monday to Friday 7 a.m. - 6 p.m. Australia 1800 652 972.
- If experiencing any unusual symptoms that may be related to the neurostimulator, contact a doctor.
- Attend all follow-up appointments.
Symptom Control
There may be changes in the level of the symptom control over time.
These changes may include:
- Reduced symptom relief
- No symptom relief
- Loss of effective stimulation
In many cases, the clinician can correct these changes by reprogramming the DBS system. However, surgery may be required to reposition or replace the lead, replace the system, or remove the system.
Because the disease may change with time, one's condition may improve, may worsen, or may remain unchanged with stimulation.
When the neurostimulator is turned off, the symptoms will return. Some symptoms return quickly. Other symptoms may take longer to return.