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SPEAK OUT IN YOUR COMMUNITY

Too often, embarrassment prevents people with bowel control issues from getting the help they need. You can change that by speaking up about this important issue. Here are some tips for talking about your diagnosis, treatment, and results in your local community.

Posting on social media

  • Share your story on the networks you already use
  • Join chronic FI groups on Facebook, Twitter, and YouTube
  • Be open about the realities of your experience
  • Contribute consistently and be open to questions

Sharing face-to-face

  • Contact local support groups for chronic FI or bowel issues
  • Offer to speak at community centers, libraries, and hospitals
  • Sign up to help educate at a local health fair
  • Tell your doctor you can speak with prospective patients

Speaking with journalists

  • Connect with a reporter covering health, community, or features
  • Think of a personal anecdote that really captures how you feel
  • Recall key details about your symptoms, diagnosis, therapy, and results
  • Prepare two or three simple, clear points to repeat during your interview

HOW TO CRAFT YOUR STORY

Here are some important questions to ask yourself as you prepare your story:

  • What makes your story yours? What is unique about your experience?
  • What do you want people to remember? How you felt? Big decisions? Your results?
  • How much do you want to say? Share what feels comfortable.

Get Inspired

See what others are sharing about their therapy experience.

Read patient stories
Woman poses with horse in stable.

“I've been able to fully embrace the activities I love.”

– Judy,
Patient Ambassador Living with FI

Information on this site should not be used as a substitute for talking with your doctor. Always talk with your doctor about diagnosis and treatment information.